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“I think I pulled her G-tube out.” The words came out of my mouth, and my soul had just left my body. Here is how that happened. Feeding and weight gain had always been a struggle with little Trini. After a few appointments, the GI team suggested that a G-tube would help her grow and… Read.
Life with DiGeorge:
A Father’s POV
Sharing my journey of faith, love, and resilience as a father of a 22qtie; Because no father should walk this path alone!
“Two are better than one, because they have a good reward for their toil. For if they fall, one will up his fellow. But woe to him who is alone when he falls and has not another to lift him up! – Ecclesiastes 4: 9-10
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Finding Balance: Family and Military Life
After spending some time in quarantine and getting a sneak peek at what 2020 would be like, we left the hospital. Finally, some time to enjoy at home. I was able to enjoy time at home with my 22qtie. I went to work the following Monday, and to my surprise, I was scheduled to attend…
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Quarantine before it was cool!
We received our discharge paper after spending a week in the NICU. She was still tiny and was sinking in her car seat, so we had to add an extra layer of padding. That didn’t matter; my daughter was beautiful, and I just wanted to hold her all the time. (Some clarification: that while at…
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From the Beginning
It took over 36 hours from the moment we checked in to the hospital to the birth of my daughter. It was 1 in the morning when she would enter the world. She came out with the umbilical cord wrapped around her neck. However, I still had the pleasure of cutting the cord. Everything was…
Life with DiGeorge 